Back in July a fellow Apert Mom messaged me that they started a new steroid cream, called clobetasol. This family has been dealing with the same incision problems for just about as long as we have. They had seen huge progress with this so they wanted to pass it along. So I took that to her surgeon and he said it was worth a shot. We saw an immediate improvement about a week in. It took until about a week after this last surgery in October and all of her scabbing is gone! So, basically what we figured out is her body is having an autoimmune response to the stitches. It's trying to reject the stitches and scabbing up in reaction to that. So now any time she starts to scab a little or when she has future surgeries we just put a little cream on and it will knock it back down.
While we were in the hospital this last time her plastic surgeon had us consult wound care about her incision not closing back up and see if there was anything more we could try. They mentioned medihoney, which we have tried with no success. So then they suggested we try Venelex cream. This basically stimulates the capillaries and promotes skin growth. We have seen a big difference in the size of the wound. I'm not wanting to jinx ourselves so I'll wait to say certain words until we know for sure. Her surgeon wants us to make a decision on whether it is moving in the right direction or if she'll need surgery to close it back up again before she gets her PICC out at the beginning of November.
We are so very thankful for our Apert family, it's such a huge life saver to have access to others that are going through the same thing as you and can help give advice. We'd be lost without them!
