Thursday, March 28, 2013

8 months 3-26-13

Braylee is now 8 months old and doing amazing. She wants to crawl so bad but still needs a little more upper body strength.
We made a trip to Salt Lake City yesterday 3-25-13 and had appointments with 3 of her doctors.
Her first appointment was with her plastic surgeon who did her cranial vault reconstruction for a check up and he said everything looks good, she just has a few scabs that should be healed up by now. So we just need to put some antibiotic on them to keep them moist and hopefully they will clear up. We have a tentative surgery date to repair her cleft palate for April 26, 2013. This date will most likely change since it still needs to be coordinated with the hospital. We are excited to have a date to work around and get it fixed to help her eating real food and to hopefully help move along her speech.
Her second appointment was for her helmet which we are still having some problems with it. She did make it almost 2 weeks with no problems so that is an improvement! She started to have some pressure points last week so he adjusted her helmet a little bit and hopefully everything goes smoothly now. Her Dr. Said we should be about out of weird stuff that can happen. It sure has been a roller coaster.
Her third appointment was with the E.N.T for a follow up for her tubes they put in her ears during her cranial surgery. Everything looks good with her tubes, so that is good to hear! He had a hearing test done and she responded great to that so her hearing is still good. 
One step at a time!

                                                           

Her shirt from Cranio Care Bears! :)

Hanging out with sister waiting for the Dr.

All smiles


She loves to jam on her piano and get applauded!

My helmet gives me a Mohawk :)

Wednesday, March 6, 2013

The next step in our journey

First off Braylee did get discharged from the hospital the day after she was admitted.  We are giving her breathing treatments when she needs them, which hasn't been very often.  She is doing better and better each day! We sure are having a hard time with her helmet. Every time we work our way up to wearing it all day, everyday then something happens (fever, swollen lymph node etc) and we have to take it off. Hopefully we have her in it again by the end of the week.
We had an appointment with Shriners Monday 3-4-13 to determine when we will be doing surgery on her hands. The anesthesiologist there said it would be safer for B if we waited until after her cleft palate was fixed and she was around 1 year of age. So we are planning on doing that surgery in August sometime. Her cleft will be done around 9-12 months of age.
She is the happiest baby ever, even when she is sick. :-)

She loves her puppy!


Rocking Daddy's hat

Psh who needs fingers to eat snacks..anything you can do I can do better!!