Monday, April 17, 2023

Hospital Day #3. 4/17/23

Well another big day with a lot of information and a lot to unpack. 
I'll start off by saying she didn't have surgery or get a PICC today. Her CRP levels came down to 6.7 so they are trending in the right direction. Her swelling and redness were better this morning but have increased during the day. 
During rounds ENT said that they consulted with one of the ENT's over at The University of Utah hospital that specializes in sinus reconstruction.  He thinks the best approach is to go in and modify her sinus structure and open it up more so that things will be able to drain and she hopefully won't ever get this again. This is a much bigger surgery than we anticipated but if it will fix it in the long run it will be worth it. He wants to let the infection cool down some more before he operates so it will be sometime this week, maybe around Wednesday. This surgery is out of Primary Children's wheel house so the surgeon from the U will be doing it. They will be consulting the neurosurgeon we trust just in case he thinks he needs to be present at surgery. We have kept her plastic surgeon in the loop (he doesn't have privileges here) and he has some questions for the neurosurgeon, so tomorrow we'll get those answered. 
She will hopefully be able to move to oral antibiotics tomorrow but that could all change if new organisms grow. Also, ENT thinks there's a chance we don't have the full picture of the infection because we haven't gotten a culture of the abscess in her forehead. So there's a chance the antibiotic plan could change after surgery. 

She did great most of the day, not needing any meds but after playing pretty hard at the playroom today she had a bad headache and wasn't feeling very good. We got her some ibuprofen and 30 minutes later she was her happy, bubbly little self. 
Tomorrow will be just another day in the hospital, playing Xbox, painting, watching movies, and anything else we can do to keep her comfortable and entertained. 

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