Monday, June 2, 2014

Finger reveal day!!! 6-2-14

Super B waiting to get her casts off
Playing with sister


















Today was the day that we got to get Braylee's casts off and got to see her  new fingers for the very fist time. They are absolutely beautiful!   Most parents wait the 9 months to get to see and feel those little fingers.  We waited 31 months to see her 8 and it is well worth the wait!  I am so happy that there are surgeons out there that can help give her a better way of life by giving her some fingers. Yes every surgery is hard and stressful but in the end it is completely worth it to see that her life is changed for the better.

Braylee isn't quite sure what to think of her new fingers yet and keeps picking at the scabs.  They are still pretty tender but now with the casts off they will start to harden up and we will start to desensitize them.  They had to take quite a bit more skin grafts this time around, but they took well.  Her surgeon was very pleased with how they looked today and we will go back in 3 months for a check up and to talk possible surgery to release her last set of fingers.
Here are some before and after pictures.  Warning her fingers are still healing so they are still red, swollen, and scabbed up.























Oofta sure makes you want to cringe, huh?  Good thing she is so tough!!  She is my little hero taking it all in stride.   I'm so glad she can empower others to be strong and not fret on the little things.


Onto other things, her cpap is coming along.  We are now trying to get her use to wearing it at nap.  She has had a cold since surgery so that hasn't helped with the process.  She can now fall asleep with it on, but wakes up in a panic 20-25 minutes in.  The time has gotten longer each time so hopefully soon she can wear it all during nap and then we will work on night time.

She is one tough little girl and we couldn't be more proud of her!





Visiting with the dog.