Tuesday, August 12, 2014

Oh the joy!!

Spraying sister!


 Yesterday was a great day of news!  Let me tell you there is nothing that makes that 4 hour drive home better than good news from the doctors!

Her first appointment was with her dentist.  He said her enamel is great and her teeth are looking good.  Go back for another check up in 6 months.
Dr appts. are exhausting

She had  an appointment with her cranial facial team next. Here she met with her E.N.T, plastic surgeon, speech pathologist, and orthodontist.  Her E.N.T. said her tubes look good and was glad to hear that her cpap is moving along, which is a plus meaning she won't need a trach.  He said to start her at night time now.  A little bit is better than nothing.  We will go back in a year for another check up.

Her plastic surgeon was happy with everything. He is going to take his measurements back to his office and compare them to her previous measurements and call us if he has any concerns about the growth.  We are also still keeping an eye on her 2 soft spots on her skull to make sure they don't get any bigger and hopefully get smaller.  We will go back in 6 months and hopefully she has made some progress.

Yay water park fun!
The speech pathologist was very happy with her progress and says to keep up with her early intervention speech therapy.

Her orthodontist said her mid-face is starting to slow down on its growth,( a common thing with Apert, their mid face grows at 1/3 of the rate of other children)   but hers is considered not severe at this time.  He is pretty sure she is still going to need the mid-face advancement when she is older (usually around 7 years old).  If the cpap ends up not doing what it should we will have to do the surgery sooner rather than later, to open up her nasal passage.  He is happy with her progress and apparently made an impression on B since he is the only one she gave a high five/ four to.  We go back in a year for a check up.

Nothing better than good news!!!

We got to go over on Sunday and go play at the water park.  B loved floating around the lazy river in an inner tube.  She liked the slides on the smaller side, she wasn't sure what to think of the big twisty slides.

She is really getting into playing hide and seek, she will cover her eyes and tries to count.  It  is really cute and funny. But she always gives away the persons hiding spot since she doesn't hide her eyes the whole time haha.....her sisters' own little spy.  :)  She is a growing machine weighing in at almost 26 pounds and is 34.5 inches tall!

Keep on keeping on, one step at a time!
What is this thing???!!!