Tuesday, November 10, 2015

HOLY MOLY 1 YEAR SURGERY FREE!!!!












 Can you believe Braylee has gone one WHOLE year without a surgery, that is 365 days of pure bliss and something we do not take for granted!!!  This is just an enormous milestone.  Since she was born, the longest we had gone without a surgery was 9 months.   There was a time when we didn't know if we would ever go a year without a surgery, but that time has finally come and we are enjoying every single minute of it! The year 2015 has been great to us! Now for a little update from all of her doctor visits.

In the last couple months we have been super busy with check-up  appointments.  We'll start with her dentist appointment.  He said her teeth look great and is impressed with how her teeth are coming in. Easy, peasy!

Ready to get her eyes checked
 For her check up with her orthopedic surgeon for her feet, we avoided scheduling a surgery for the bottoms of her feet.  We are still trying to delay this surgery as much as possible since she is still growing and so the spot they shave down will just end up growing back. The least amount of surgeries we can put her through, the better.  So what we did instead was made her some different orthotics to help cushion those spots on her feet some more and try to relieve some of the pain of walking on them.

The ophthalmologist was very impressed with her eyes.  She still has no need for glasses, YAY!!! We avoided her eye surgery again. With Apert kids the eyes tend to drift up and out so they need to go in and try to strengthen the muscle so that it will keep the eye from drifting.  As of right now her eye only drifts when she looks up and not when she is looking straight ahead, because of this we got to delay the surgery for a couple of years he thought!

Her check up with her ENT was quick and painless.  He checked the placement of her ear tubes and said they still look good, which is surprising since she has had the same set for almost 3 years now!! (They usually only last a year or two)  We talked about her sleep study that she was having that night and what to expect with the titration study.  A titration study is when they do the sleep study with her cpap on.  This way they can regulate her cpap and see what pressure works best for her.  Her pressure is currently on a 6 and she is still having some hypopnea issues so her pulmonologist ordered for them to get her up to a 10 during her study.We are still waiting to hear the results of her sleep study,
we will hopefully hear something by tomorrow.


Her appointment with her orthopedic surgeon for her hands went very good.  She was very pleased with how they look and said that they look great.  She said at this time we are not going to worry about the web creep from  her last surgery, as long as it doesn't bother her we will just leave it alone at this time.  We don't go back and see her for a year, yahoo!!!!


She is a spunky little 3 year old with a lot to say!!  She started preschool this year and is thriving.  She loves it there.  She can count to 14 and can repeat just about anything you say.  She started dance class, the girl loves to dance.  She is loving every minute of it.  Can't wait to watch her and her sisters dance recital in May. Ever since her sister started soccer last year she has wanted to join in so badly.  Well she was finally old enough this year and it was the cutest thing ever to watch.  She loved just running up and down the field and being a kid!



She lights up a room just by being there.  It is almost impossible to be in a bad mood around her, she is always so happy and will do anything to make you smile.  She has become obsessed with the horses and loves to ride.  Even becoming so confident to get up there and ride by herself.  So great to watch her confidence grow and for her to able to do anything that she wants to do.  I'm so excited to watch her grow up and blossom into an amazing and inspiring girl!



Happy Halloween!