Tuesday, July 25, 2023

Happy 11th Birthday and an update! 7-25-2023

First I'll start off with a very Happy Birthday to our girl! She turned 11 on July 23rd. She always wants to go camping on her birthday but this year we had the opportunity to go up to an amazing cabin in Colorado and she decided she would rather do that. We spent it with some of our favorite people. She figured out how to open up a can of pop and it was a huge milestone and so very exciting that she was all about opening up everyone's drinks all weekend after that. Just proof that persistance and never giving up are well worth it and so rewarding! It was a great weekend and none of us wanted to leave. 


 She had her second post-op appointment on the 19th and everything turned out great!!! She rocked it as usual, even doing her numbing spray all by herself and sat there while he scoped up her nose. It looked so amazing with no build up in her nostrils or frontal sinus. He was so amazed at how well it looked and wished his adult patients would look that good post-op. She can go down to one nasal rinse a day with her budesodine (steroid) and she was given the ALL CLEAR to be a normal kid!! She is so excited to go kayaking and get to enjoy the lake. She will go back in November for one last scope and if everything is still looking great then she will be released and not have to go back!! We are so very happy to get to enjoy the rest of the summer with no restrictions!!

Thursday, July 13, 2023

Update 7/13/23

Sorry for the late update, it's been super busy around here. We went for her post-op appointment on June 29th. During this appointment he wanted to scope her and look in her nose to make sure everything still looked clean, wet, and there was no build up. I had talked to Braylee the night before about this and I promised her ice cream if she would sit still and allow him to scope her in the office so we didn't have to go to the OR. She agreed and did an amazing job of course. During the scope everything looked great but there was still some mesh that needed to dissolve and the steroid stent that he put in was still there too. Those typically take around a month to dissolve so she still had time. There was a little bit that he wanted to suction out to get a better look but her nasal passage is just so small that he couldn't comfortably fit both the scope and suction. So he decided that since everything looked good so far, we were going to give her a couple more weeks and continue with the nasal rinses and he added in a steroid prescription to be added into her nasal rinse water. We go back on the 19th and he will scope her again and if everything looks good she will be good to go for another couple months. If there is build up  he wants to get out then she will need to be taken back into the OR so that she will be asleep and he can clean her out without making her super uncomfortable. That would be scheduled for another day so that he can get an OR at Primary Childrens, where they are more equipped than the University of Utah Hopsital to handle her small airway.  As promised she got her ice cream but the only place open at 9 a.m is McDonald's so that's what she got😂. 

It's finally starting to turn summer here in Pinedale so fingers crossed that everything looks great on the 19th and she'll be able to finally enjoy the lake and some kayaking. We did give her her birthday present a month early so that she can do something fun while she recovers. It's been a huge hit.