Updates 9/12/17

We had a very busy 6 1/2 hours of doctor visits. Her first appointment was a teeth cleaning with her dentist. She's doing great and has no cavities. We still have to be watchful of the spots on her front 2 teeth and make sure they don't get worse. He gave us some flouride to put on every other month. Starting the day off good!

Her second appointment was with her Ophthalmologist. She still has no need for glasses, hooray!! She was not a fan of the eye drops to dilate her eyes this time around but she toughed it out and went on with the rest of her day. Her optic nerves look good, which is always a sigh of relief to hear. There still is no need to do the eye muscle strengthening surgery,  since her eyes aren't always drifting, we can put that one on the back burner for a little bit. When she looks from side to side her eyes will drift up and out, when she looks straight on they will drift just slightly and when she looks down they are still straight. So we are to watch her and make sure the drifting doesn't get worse since she will start to begin to read here soon, his main concern is that it will cause her to have double vision. So another appointment with no bad news!!

not liking her eyes dilating. 

Her third appointment was with her orthodontist.  Nothing has really changed here and he still wants to move forward with doing the Sarpe surgery. We just have to talk with her plastic surgeon about when. It's a 6-8 month recovery process so it's timing is something we want to put some good thought into. I don't want to be driving the 240 miles(one way) on bad winter roads for all of the check ups that this procedure will require.  We went over her CT scan that we did back in March. It was pretty cool to see all of her uniqueness in 3D. Things are really narrow in there (which we knew) but it's always crazy to see just how narrow. So another good appointment with no bad news, just stuff we already knew.

talking with the Dr.is boring and exhausting!

Her last appointment was with her plastic surgeon. He measured her head and it hasn't really grown in 6 months. He isn't very worried about that at this point. Since she isn't showing any signs of problems then that still means she still has room in there. We are to keep an eye on her and let him know if we notice any changes. We then talked about the Sarpe. He is willing to do it whenever we think will be best, so as of right now it will be sometime in March. Pending everything lines up with our schedule and the schedule of 3 other doctor's.

All in all it was a great day with good news. It just seems a bit surreal to have a surgery in our sights. She will be 3 years surgery  free this November!! She continues to amaze us with how strong and amazing she is. She rocked all of those appointments today with only 1 small melt down.

We have started off the new school year and it's super busy!  She has started soccer and dance class. As usual she can't wait to get off to school. She is making more friends this year in her class and it makes this Momma happy to see others so excited to see and play with her!