Well today is the day that Braylee Rae turns 2 years old!!! I just can't believe that she is two already. I can still remember the day she was born like it was yesterday. Well, lets be honest no one could forget that day for many reasons. It is the day we fell in love again and also the day that our worlds were turned upside down. It has been a whirlwind of a 2 years and the only thing I could change if I could would be all the pain she has had to go through. No parent wants their child to have pain. Even though she handled it all like a champ, always smiling and happy. I still hate that she had to go through all of that.
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| What?? I'm not getting into the presents!! |
Apert Syndrome is part of who she is but it doesn't define her. She is a smart, bubbly, stubborn little 2 year old. She is in to copying her sister and playing hide and seek. The two of them together (when they aren't fighting) is the sweetest/funniest thing to watch. Charlee is so protective of Braylee and wants to help her with EVERYTHING! So much so that it frustrates B when Charlee tries to help her. She wants her independence and I love that about her. She won't give up and is just so strong willed.
In other news, her fingers have healed up wonderfully! All of her scabs are gone and they are just beautiful! We go back for a check up on her hands, feet, and spine at Shriner's on October 6th.
We go see her craniofacial team on August 11th for a check up to make sure everything is moving in the right direction.
Her cpap is moving along. She has worn it up to an hour and a half straight during the day. We will be trying it during nap again here soon.
It has been a great 2 years, she has taught me so much and I can't wait to see what she can teach me in the many years to come! Such an inspiring little girl.
