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| 10 fingers! |
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| So happy |
On Wednesday February 18 we were in Salt Lake Braylee had 3 doctor appointments and it resulted in nothing but good news!
Her first appointment was with her pediatric dentist. He said that her teeth look good and there are no cavities. They weren't able to do a cleaning this time but were able to get some flouride put on so that is at least something. There is one tooth that I have been a little concerned with coming in since it hasn't fully come through and is smashed between 2 others. He said that it most likely has come in as far as it can and it will stay that way since there is not really much room for it, so we will just have to keep an eye on it. We go back in 6 months.
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| Alvin and the Chipmunks are starting to grow on her |
Her second appointment was with Shriners for an impromptu appointment for her feet. I called last month about it and since it only really bothers her when she is barefoot I decided we could wait for a consult until we were coming to town. She seems to be a little more comfortable when she has her shoes on with her orthotics so she gets to wear her shoes around and only every once and awhile will she complain that it hurts this way. She has this spot on the bottom that is really common in Apert sydnrome. It is a bone that is starting to protrude down between her second and third toes most likely from the fusion of the bones. The doctor came in and was really quite shocked at how fast it came on since we saw her in October and there wasn't anything. It is really bad on her left foot and not as noticeable on her right. She said her first thought is amputation......yeah talk about hitting a brick wall in shock/horror at that!!! Not even an option in my book! We then talked some more and I mentioned that others with Apert have it shaved down and she said she would be more than happy to do that and then I asked if messing with her orthotics would help for a little while. After some discussion we decided the best route for now is to change up her orthotics to give her more cushion where her bone is protruding and delay surgery as much as we can. Especially since she is still growing and this spot will most likely grow back resulting in yet another surgery after that. Her new orthotics will be ready in about 3 weeks and in the meantime we are going to keep her comfortable with the ones she has now.
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| She loves sledding |
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| Silly girl |
Her third and final appointment was with her plastic surgeon for a check up on her head. He was very happy with her head growth and said that soft spots that we have been watching for a year now that haven't completely filled in yet are small enough to not be an immediate concern. If they don't fill in, in a couple of years while her head continues to grow then he will intervene and fill them in. We don't have to go back for another check up for a YEAR!!! What a relief!!
On another note her latest finger releases are starting to have some web regrowth (sadly quite common). They have grown back up around a 1/4 of an inch now and still going. I will be calling her surgeon about this and see if she wants to see her in the near future or if she still just wants to wait the year to see us. The only thing to do is another surgery to release these but we'll see :'(.
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| Spacing should be even with the space next to it |
Anyways she is getting to be such a sassy little thing. Her 2 year old attitude is really starting to shine through. Her sentences and double words are really coming together. She is a talking fool always wanting to tell a story! Her occupational therapy has really been paying off. She loves to put headbands on and do her hair. Something her shoulders restricted her from doing until we started therapy over a year and a half ago.
So a few things we still have to keep an eye on but I am happy that we don't have any immediate concerns and can have a nice long break from doctors!!
