It sure has been nice to not have to update the blog with updates from visits to doctors. So much so I haven't posted in awhile... a long while, sorry about that. Where ooh where to begin. Well, since my last post Braylee has become a BIG sister!! Her baby sister Maddee Thomas was born May 12th. The girls absolutely adore her and can't get enough of her. The best big sisters... almost too much so. ;) The poor baby has no bubble.
Braylee is now 3 years old, can you believe it?!! She is an amazing little girl, never a dull moment when you are around her. She makes us laugh every single day. She is 32.5 lbs and 38 inches tall!
Braylee is now 3 years old, can you believe it?!! She is an amazing little girl, never a dull moment when you are around her. She makes us laugh every single day. She is 32.5 lbs and 38 inches tall!
Growing, growing girl! Her head circumference has been consistent so that is great news!! We got to celebrate her birthday in the Big Horn Mountains with a group of amazing friends. She got a minion party theme. She loves the minions. She got a minion piñata and cake, all up in the mountains in the middle of nowhere. We sure had fun!! For her birthday she got a pickup and horse trailer and a bunch of livestock to go with it. She has obsessed with her "moo", it's a toy calf that she carries EVERYWHERE with her. At least it's a small toy so it's not too big of a pain to drag everywhere. Unless you are trying to find the lost moo then its size becomes a problem. ;) So we thought this would be the perfect gift to go along with her obsession. Ooh boy!!!! We also got to jump down and see Braylee's great grandma on our last day of camping and have another birthday party. Spoiled little girl got 2 birthday cakes! She had tons of fun seeing everyone there.
Braylee has been thriving in every way!! Her speech has completely taken off, talking in full sentences. Amazing us everyday. Her older sister Charlee keeps saying "she can say almost every word now!!" Just one of the greatest feelings in the world!
Her fingers have healed up nicely. She has a little web creep (regrowth of the web) so we'll see what her surgeon thinks when we go back for her check up in December.
She has had a nice break from seeing her
specialists, but at the end of August we are back at it again. She will be seeing her dentist, orthopedic surgeon for her feet, pulmonalogist, and plastic surgeon.
Her dentist is a routine cleaning and check up. We are seeing her orthopedic surgeon about the spot on her foot that has been bothering her. Our plan was to wait it out and hopefully get by without another surgery for a little while but that looks like it's not going to happen, she is complaining about it hurting more and more. So I'm afraid we will be scheduling a surgery to take care of that.
I called pulmonary a couple weeks ago because I think her cpap pressure needs to be bumped back up to 6 instead of the 4 she is on now. When we did her first sleep study they determined she needed to be at a 6 but it was just too high to get her comfortable to the cpap at 2 years old so they turned it down to 4. Now that she is 100% compliant there are nights that I think she needs that little bit of extra push from her cpap, especially when she doesn't nap or has a really busy day. Her apnea just gets really bad then even with it on. So we will be going over her progress and talking to the doctor about what she thinks needs to be done. My guess is we will have to schedule another sleep study but maybe not we'll just have to see.
As for her visit with hey plastic surgeon, we have started to notice a "peak" on the top of her head at the tip of the scar. It has been causing scabs to show up. I called her plastic surgeon and talked to him about it. As of right now he wants us to keep an eye on it and if it gets worse, gets sensitive to the touch, or starts to drain then we will need to bring her in because it could be a sign of a bone infection.... Ugh not something you want to hear. We hope it's just a plate that is just taking longer to dissolve than usual and that's what's causing all the irritation. So I am going to be scheduling an appointment to see him since we are already going to be down there just better safe than sorry.
Her pediatrician at her 3 year check up said her tube in her right ear was starting to fall out so I'm letting her ENT know and we'll see what he wants to do. She has had the same set of tubes for 2.5 years!! Quite impressive I must say!
She has had a nice break from seeing her
specialists, but at the end of August we are back at it again. She will be seeing her dentist, orthopedic surgeon for her feet, pulmonalogist, and plastic surgeon.
Her dentist is a routine cleaning and check up. We are seeing her orthopedic surgeon about the spot on her foot that has been bothering her. Our plan was to wait it out and hopefully get by without another surgery for a little while but that looks like it's not going to happen, she is complaining about it hurting more and more. So I'm afraid we will be scheduling a surgery to take care of that.
I called pulmonary a couple weeks ago because I think her cpap pressure needs to be bumped back up to 6 instead of the 4 she is on now. When we did her first sleep study they determined she needed to be at a 6 but it was just too high to get her comfortable to the cpap at 2 years old so they turned it down to 4. Now that she is 100% compliant there are nights that I think she needs that little bit of extra push from her cpap, especially when she doesn't nap or has a really busy day. Her apnea just gets really bad then even with it on. So we will be going over her progress and talking to the doctor about what she thinks needs to be done. My guess is we will have to schedule another sleep study but maybe not we'll just have to see.
As for her visit with hey plastic surgeon, we have started to notice a "peak" on the top of her head at the tip of the scar. It has been causing scabs to show up. I called her plastic surgeon and talked to him about it. As of right now he wants us to keep an eye on it and if it gets worse, gets sensitive to the touch, or starts to drain then we will need to bring her in because it could be a sign of a bone infection.... Ugh not something you want to hear. We hope it's just a plate that is just taking longer to dissolve than usual and that's what's causing all the irritation. So I am going to be scheduling an appointment to see him since we are already going to be down there just better safe than sorry.
Her pediatrician at her 3 year check up said her tube in her right ear was starting to fall out so I'm letting her ENT know and we'll see what he wants to do. She has had the same set of tubes for 2.5 years!! Quite impressive I must say!
She will be starting preschool in the fall and I think she is absolutely going to love it. We have been doing an "introduction" to preschool with a few other kids that will be starting just to get them use to the environment and getting the swing of things. She has been loving every minute of it. Doesn't even bat an eye at me when I drop her off; its an "okay, bye mommy". One of those things where in the back of your mind you wish they would shed a little tear but then so glad she loves it that much where she feels comfortable without me there. It really helps that the staff there are really amazing.
So I will be having more medical jargon updates coming at the end of the month but until then we are enjoying our 6 month break from her doctors. Keep on keeping on!!
