Another hospital stay 2-28-13

Braylee was diagnosed with RSV yesterday 2-27-13. We came and saw her Dr. Today and he wants to monitor her for 24 hours since she is a high risk baby and we live so far away. So we have been admitted to the hospital.  As of right now all of her levels are normal with a low grade fever. She has a really tight cough that makes her uncomfortable at times. Hopefully everything stays normal and she can get some much needed rest and get over this crud quickly

Still a happy little girl even if she doesn't feel the greatest.

Pretty purple helmet 2-15-13

Today Braylee and Mommy made a round trip to Salt Lake City to get B her helmet. The helmet is going to help keep the shape of her head as she grows and to help round out the spots that didn't get fixed during the surgery. We will be getting her use to it for the next couple of days and by Wednesday we will have her wearing it up to the 23 hours a day for around 6 months. She seems to be getting more comfortable with it every time we put it on. The stitches are falling out and everything is healing up.
She is up to 16 lbs and 27 inches tall.

Ready to get her helmet!

Aren't I cute!

I'm a big girl now!!

GO POKES!!

Happy one week cranioversary!

Can't believe one week ago we were waiting in the waiting room during her cranial vault reconstruction surgery! Time has really flown by. The swelling has decreased to almost her new normal now! A perfect little round head with tons of room for her smart little brain! She is having a hard time at night but we think it is due to separation anxiety. Since she is  completely calm as long as she is with us and caught up on her meds. I have to say I would have some separation anxiety too if I couldn't see for a couple of days. Completely normal reaction in my book.

WE ARE HOME!! 1-27-13

Well we have made it home. We are so happy!!! Braylee had a great first night out of the hospital. We will stay on top of her pain medications and hopefully soon she will only need her motrin. One step at a time.

She missed her walker and toys!

Discharged from the hospital! 1-26-13

Braylee has been discharged from the hospital!!! We will be staying at the hotel tonight just as a precaution since we live almost 4 hours away we want to just take it slow and relax today ! We couldn't be happier that we get to leave the hospital 4 days after her cranial reconstruction!!  One surgery down sadly quite a few to go!
Thank you to everyone for all of the kind thoughts and prayers for miss Braylee.  It means so much to us!

I am a little rockstar!!

Oh where to begin, so much stuff has happened today and great things at that!  Her pain level is soooo much better. She went through over half the day just on ibuprofen! She has stopped crying every time we touch or move her. Just talking, laughing and just loving life. She got to eat some applesauce and loved to have a little more substance in her tummy. Her head is still pretty swollen but that will continue to decrease! She has had to learn  how to hold her new head, which she got it figured out in no time! She is even feeling well enough to stand up and play! Getting back to be her normal self!

Amazing progress! 1-25-13

Braylee had an AMAZING night. She ate great and she even opened her eyes at 2 a.m.!!  She still had a few heart beat problems but her Dr. thinks it is from her pain medication so he switched that up and we will see if it makes a difference. 
Her wrap and drain both were taken off this morning! Her head and suture line look great lots of room in there for her brain to grow! She is awake and talking! We couldn't be happier this morning! It's amazing the difference a day makes!