Can't believe one week ago we were waiting in the waiting room during her cranial vault reconstruction surgery! Time has really flown by. The swelling has decreased to almost her new normal now! A perfect little round head with tons of room for her smart little brain! She is having a hard time at night but we think it is due to separation anxiety. Since she is completely calm as long as she is with us and caught up on her meds. I have to say I would have some separation anxiety too if I couldn't see for a couple of days. Completely normal reaction in my book.
Tuesday, January 29, 2013
Happy one week cranioversary!
Sunday, January 27, 2013
WE ARE HOME!! 1-27-13
Well we have made it home. We are so happy!!! Braylee had a great first night out of the hospital. We will stay on top of her pain medications and hopefully soon she will only need her motrin. One step at a time.
She missed her walker and toys!
Saturday, January 26, 2013
Discharged from the hospital! 1-26-13
Braylee has been discharged from the hospital!!! We will be staying at the hotel tonight just as a precaution since we live almost 4 hours away we want to just take it slow and relax today ! We couldn't be happier that we get to leave the hospital 4 days after her cranial reconstruction!! One surgery down sadly quite a few to go!
Thank you to everyone for all of the kind thoughts and prayers for miss Braylee. It means so much to us!
Friday, January 25, 2013
I am a little rockstar!!
Oh where to begin, so much stuff has happened today and great things at that! Her pain level is soooo much better. She went through over half the day just on ibuprofen! She has stopped crying every time we touch or move her. Just talking, laughing and just loving life. She got to eat some applesauce and loved to have a little more substance in her tummy. Her head is still pretty swollen but that will continue to decrease! She has had to learn how to hold her new head, which she got it figured out in no time! She is even feeling well enough to stand up and play! Getting back to be her normal self!
Amazing progress! 1-25-13
Braylee had an AMAZING night. She ate great and she even opened her eyes at 2 a.m.!! She still had a few heart beat problems but her Dr. thinks it is from her pain medication so he switched that up and we will see if it makes a difference.
Her wrap and drain both were taken off this morning! Her head and suture line look great lots of room in there for her brain to grow! She is awake and talking! We couldn't be happier this morning! It's amazing the difference a day makes!
Thursday, January 24, 2013
Hospital day 3. 1-24-13
Braylee had a pretty rough night. Her pain medicine didn't seem to be doing its job. They have upped her dosage twice now and she seems to be more comfortable! A little after noon she had to go down and have a CT scan because her heartbeat kept suddenly dropping down into the 40's for a couple of beats and then come right back up. They wanted to make sure she didn't have a bleed causing more pressure. Fortunately her scan came back clean and they said she has tons of room in there! Great news! They think her drop in heart beat is from reflux so we will just keep an eye on it. The Dr. cut a slit in her wrap this morning hoping to relieve some pressure. It took down the swelling in her eyes and moved down to her cheeks. Mommy and Daddy both FINALLY got to get in some cuddle time for the first time in two days! Braylee hasn't been this relaxed in a few days, she needed the cuddles just as much as we did!!
Thank you to everyone sending her balloons, animals, and flowers, her room shows she is loved by many!!
Wednesday, January 23, 2013
Out of the PICU
Braylee got to move off of the PICU Unit and into the Infant Unit at around 11:00 a.m.! She is doing great still and FINALLY got to have some pedialyte, which she kept down! Once we realized she would keep stuff down she got to move onto formula! She gets so excited when she gets to eat that her heart rate will jump up to 200+. She eventually calms down and it gradually goes back down. Poor thing is just starved! One step closer to getting to go home!
She got this great poster with all of her grandparents, aunts, uncles, and cousins healing hands on it!
Hospital day 2
Braylee had a pretty good night. She has opened her eyes but then just goes right back to sleep,which is fine with us that way she sleeps through the pain. The swelling has increased as expected so her eyes are swollen shut now. She should be moving out of the PICU today! Yay! She is a little rock star!
Tuesday, January 22, 2013
Night in the PICU
She is doing amazing. Hasn't quite woken up yet but we hope she just sleeps through the night. The swelling will increase over the next few days and then start to decrease then we will get to see the results. She will be staying in the pediatric ICU for the night. Thankfully mommy gets to "sleep" in the room with her tonight.
Cranial surgery is complete!
So we talked to the Dr. And everything went great! Her head is spherical now and her brow has been moved out about a 1/4 in. We will get to head back and see her here soon!
Surgery
All ready to head back to the O.R.!
Monday, January 21, 2013
Day before surgery
She is going to look like a totally different kid tomorrow.
Surgery is scheduled to start at 9:30 A.M.
Sunday, January 13, 2013
5 months and Shriners visit
We are getting closer to her surgery date and getting a little anxious but we know her doctors are amazing and she is a strong little girl that will rock this surgery! We are so very blessed to have her in our lives!
4 months
3 months
She is hitting all of the baby milestones and doing amazing! Everything that a baby her age should do! She now weighs 11 lbs. 15 oz. and is 24 inches tall!
Her older sister Charlee wants to do everything with her and loves her to pieces!
Soon after her 3 month visit we scheduled the first surgery, which is the cranial reconstruction, for January 22, 2013.