Sunday, January 13, 2013

About Braylee

Braylee was born on July 23, 2012.  She weighed 6 lbs. 9 oz and was 19 3/4 in. tall.  She was born with Apert Syndrome, which is a very rare syndrome. There is quite a bit of information on the web about this but here is a link for some more information. 

http://en.wikipedia.org/wiki/Apert_syndrome.  

 She was born with the Coronal sutures in her skull fused together, webbed hands/feet, and a cleft palate. We are very blessed that as of right now it is all cosmetically fixable and she can hopefully live a normal life.  There could be more complications that arise from her condition, we just won't know about those until she gets older.  

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