First thing we found out this morning was that her CRP which is how they measure inflammation in the body had made a huge jump up to 8.6. The normal range is between 0 and 0.7, yesterday she was at a 5.6. With these results and the fact that her swelling has increased they decided to put her on the OR schedule for tomorrow 4/17. They could cancel, if by some miracle her numbers and swelling drastically change. Their plan is to go in and do the exact procedure they did back in September and go through her nose. It is still up in the air on whether she is getting a PICC or not. Infectious disease is hoping we can just go home on oral antibiotics, just depends on what her cultures grow. Another factor is she is already onto her 3rd IV and if she keeps blowing them, then a PICC would be a better option. We can always pull it before we leave if we don't need it but putting one in can also lead to more scar tissue and harder access down the road since she is a very high risk for this to happen again. So many decisions that need to be made. We still don't have a for sure start time for surgery yet since she is an add on but we're hoping she'll go before 4 so that they can do the surgery and place the PICC if she needs it. If they can't get it coordinated for both and she does need to get the PICC she will have to go under anesthesia 2 times tomorrow, which is not ideal. So cross your fingers and toes that everything lines out perfectly. A little bit of luck thrown our way would be great.
She got to go play in the play room today, played Xbox a ton in her room, painted a little bit, and watched some shows. Tomorrow is going to be a lot of distracting her from her hunger. Could be a long day. Just keep in keeping on. Just one day closer to going home, whenever that is.
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