Someone messed up 5/9/23

We have had a very long 2 days of check ups. We started yesterday with an appointment with her ENT. Everything looked stable from his standpoint and we are just waiting for a surgery date. He thought things were in motion with the ENT surgeon but was going to touch base and make sure everything was still a go and to get her on the schedule. 

 

Today, she started off the day early with her opthlamologist. Everything looks good but it is time to get glasses. She is not happy at all about this. But we were able to find a place in network that sells the tomato glasses which a lot of Apert families use because they will fit our kids unique facial structure. She picked out a blue and purple frame, so hopefully she will be a little happier about it when she gets them and realizes that she can see better with them. 

 The second appointment was with her dentist and she got a cleaning. Glad to report she has no cavities! YAY something going right in our lives! She does have permanent teeth coming in under some primary molars. We hope that they shift and go into the spot we made by pulling some teeth about a year back, but nothing we can really do about it if it doesn't.

 Her third was with pulmonology. Everything looks good with her but she will need a sleep study/titation study to make sure she is on the correct level for her cpap. They are booked out through September of course so that will be a little bit, unless we can fit into a cancellation. 

 The fourth and final appointment was a follow up with ID. She examined her and we talked about everything. She then mentioned that we're on augmentin through May 13, and I said wait a minute...WHAT? Come to find out they wanted her on 4 weeks of augmentin but someone, somewhere, somehow messed up and only prescribed her 10 days worth. SO NO WONDER HER INFECTION IS FLARING BACK UP!!!! I was not very happy...she's been in the ER twice in the last 10 days, how could they have not noticed this?! Someone really dropped the ball and it could have been really bad for Braylee. This kind of infection is not something that you mess around with. They refilled her prescription and she will be on augmentin for the next 3 weeks. Hopefully this does the trick and gets her to surgery. We stll have no answers to her muscle pain but we just have to keep a close eye on it and hope it resolves itself. She goes back in 2 weeks for a check up and labs will be done next week if she isn't improving or getting worse but we can wait until we go back down if she is improving. 

 A lot to unpack tonight but the pit in my stomach has subsided for now. Per usual my mom gut was spot on, even though sometimes I would take it if it was wrong. Just another reminder that following your gut is always best.