We had Braylee in the ER in SLC today. For about 8 days now she has had these weird muscle pains that started in her right leg and are now on her left leg, calves, back, neck and arms too. We came in on Friday 4/28/23 and she had labs and X-rays and everything looked good. Fast forward to Monday night 5/1 and I was doing my usual assessment and feeling her forehead. She started complaining that it hurt to touch in the area where her Potts Puffy Tumor was. She hasn't complained about pain there since before she got discharged. I called ID yesterday and they wanted us to bring her back in for an assessment and labs again. We've been in the ER for 7 hours and all they did was run one set of labs.🤦 Might be the longest we've ever been in the ER. The results are still within normal range. No significant sign of an infection. So they are sending us home. My gut is telling me that there is something else going on but I guess we're just going to have to wait and see if she gets any swelling or headaches. And we still have no answers on her muscle pain. We'll come back for her scheduled check up on the 9th and go from there. Super frustrating but glad to be going home.
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